GI appointment

We saw a GI on November 4th. The appointment did not give us any definite answers but he did agree with my plan of how we proceed from here. It felt good to have support again. So we are still just suspecting some sort of EGID or MPI but essentially they are all interrelated and treatment will not be different even if we confirmed EGID as we do not want to use steroids as a long term treatment unless her life depends on it. He seems to think if she outgrows it, it will take years and she may be on a very limited diet. However she may never outgrow it and need to stay on an elemental diet.

He agrees that we should seek out an allergist who deals with these issues (we are looking to Stanford where there is one) and he recommends we seek out a dermatologist with experience in allergies. He is supportive of experimental treatments once benefits seem to outweigh risks. I am not to keen on experimental treatments but if it comes to that who knows what we will do, I guess it depends on a lot of things.

He gave us some medication to try that may stop a reaction if she takes it, but we aren't going to use it until we have at least 2 or 3 safe foods she can eat.

Overall it was great to have someone understand all the terminology I have become part of my daily life and be able to discuss all the medical issues and new research. My poor husband hears all this stuff from me on a daily basis but I don't think it understands it the way someone in the field would :-)

He was open to a lot of things and admitted this area is basically new and unchartered territory.

So for now we are happy with the GI and will add him to our team of Drs for the kids.