We made it to New Jersey in one piece and Hayls decided that crying most of the day was the in thing. So it made out trip even more crazy. We are back home and I am trying to get her settled and the crying back down to a minimum.
For now I will give a short update. Our appointment went as best as it could with a toddler crying the entire time. Basically my brain turned into mush and I tired my best to keep it working....lol....
We finally got our official diagnosis for both kids: FPIES.
That said FPIES is a world of mostly unknown and the information out there is work in progress via research. Our main source of help has been other FPIES moms and families and this will continue to be our main help.
We finally had a Dr. sitting in the same room with us who understood our every concern and nodded in agreement with everything we said! It was wonderful!
We were told however that they will never outgrow FPIES but it could improve once we achieved digestive tract homeostasis. Even when homeostasis is achieved anything could throw it off such as a stomach virus.
We are just happy to have a Dr. assist us on our FPIES journey!
